Cleidocranial Dysplasia Life Expectancy

Cleidocranial dysplasia is a rare disease and occurs in almost one child per I million children. It is not a fatal condition. It can be treated and managed in a good way. Surgeries are performed to treat the bone and teeth deformity. The life expectancy of children with cleidocranial dysplasia is normal. Children with cleidocranial dysplasia survive like average people children but they need some extra care and attention in order to cope with their deformed structure.

The life expectancy also depends upon the care and attention of parents. Parents have to keep an eye on their children so they can grow in a better way. Parents have to teach their children about how to move and walk and talk properly. These children require special care from both health care providers and parents. Children may lead a healthy and fulfilling life if parents support them in any way.

Early diagnosis of cleidocranial dysplasia is important. Late diagnosis may lead to further problems and ultimately the new born my die. In most of the cases, cleidocranial dysplasia is diagnosed within the womb of mother. Sonography is performed to check the normal development of baby. The size of shoulder is measured and assessed as if it is normal or shorter in size. If the size of the shoulder is smaller than average, then it is due to cleidocranial dysplasia.

Cleidocranial dysplasia has the symptoms which resembles with the symptoms of many other conditions like mandibuloacral dysplasia, pyknodysostosis, ostogenesis imperfecta and hajdu Cheney syndrome. So diagnosis should be accurate. X-rays and other tests may confuse the diagnosis and leads to mismanagement of cleidocranial dysplasia. As a result the life expectancy is reduced. The new born may die due to mismanagement.

As it leads to various medical conditions like sinus infections, ear infections and sleep apnea so, management of these medical conditions is also necessary. If there is sinus infection, then life expectancy may go lower due to no proper treatment or management. If these conditions are left untreated, then it may get worse. Early management leads to improved life expectancy rate. If there is delay in management of cleidocranial dysplasia, then the chances of life expectancy become less.

People with cleidocranial dysplasia have normal life expectancy. The survival rate also depends on the immunity and will power of child. There is no proper or specific treatment for cleidocranial dysplasia so management is important. Without management of symptoms and structure of body, it becomes difficult for child to cope with these deformities. Management is all dependent on the symptoms of an individual. In most of the cases, patient requires keen dental care for the management of teeth and jaws. Dental abnormalities are the part of symptoms of cleidocranial dysplasia.

It takes years for children to be familiar with such structural deformities. Proper speech therapies are conducted to check the speech and language of children suffering from cleidocranial dysplasia. Till now no case is reported with the death of the child.

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